17 September 2005

Events > Photo Gallery > 17 September 2005 - Adult Information Day
About the Society Events Frequently Asked Information Photo Gallery Newsletter Discussion Group Useful Links A-Z Index Contact Us	Health Issues for Adults with OI - Prof. David Sillence - Osteoporosis and its Treatment in OI Adults - Assoc. Prof. Michael Hooper - Transitional Care Services - Dr. Jane Holmes-Walker - Transitional Care Services - Ruth Webb - Osteoporosis - The Bone and Mineral Decade - Judy Stenmark - Open Forum - Dr. Craig Munns - Transition Day at Luna Park (Video) - Lynne Brodie - Transitional Care Services - Renee - Afternoon Tea - Attendees - - Professor Sillence and Dr Craig Munns - - Andrew Longhurst and Mr Longhurst - Afternoon Tea - Attendees - Summary of Presentations Health Issues for Adults with OI - Prof. David Sillence Head of Medical Genetics, Westmead Prof Sillence spoke of the range of OI Types, currently fourteen in all;the various complications of OI and the effects in adults; management of short-term and long-term effects of OI; what can be cured and what needs to be managed. Osteoporosis and its Treatment in OI Adults - Assoc. Prof. Michael Hooper Head of Dept. Diabetic & Endocrinology, Concord Dr Hooper described the meaning of osteoporosis and the use of the 'T-score' and 'Z-score' on tests. He outlined possible causes for Osteoporosis as well as current pharmaceutical treatments available to patients. Transitional Care Services Dr. Jane Holmes-Walker Endocrinology - Dr Holmes-Walker is from the Western Sydney Area Health Services and has her outpatient clinic at the Westmead (Adult) Hospital. Dr Holmes-Walker highlighted the problems many young long-term young patients with OI have upon reaching age 18, when they are usually required to leave behind the familiar paediatric medical system for the unfamiliar and unknown adult medical system. Only recently have medical professionals started to understand the problems that young patients going through this transitional phase of life have and assisting them 'transfer' successfully from one to the other. Transitional Care Project Ruth Webb, Transition Care for Chronic Childhood Illnesses, NSW Health Ruth related her experiences as a new worker in NSW Health regarding the youth transitional care project. She highlighted the limited knowledge that the average medical professional has regarding the developmental issues of young people as they transfer to an adult-care model from a paediatric health-care model. She concluded on questions to the attendees regarding what issues or needs they have regarding this transfer time. Osteoporosis - The Bone and Mineral Decade Judy Stenmark CEO Osteoporosis Australia Judy spoke of the projects of Osteoporosis Australia www.osteoporosis.org.au and their involvement with other health groups, like Arthritis Australia and bone health groups. She described the process of getting this condition on the agenda as a National health issues, as well as support to the Bone and Mineral Decade. October 20 - World Osteoporosis Day Open Forum Chaired by Dr. Craig Munns Endocrinologist (Bone and Mineral), The Children’s Hospital at Westmead Dr Munns form the Endocrinology department at Westmead Hospital facilitated this discussion from attendees. Transition Day at Luna Park (Video) - Lynne Brodie Program Manager, Transition Care for Chronic Childhood Illnesses, NSW Health Lynne spoke about the process of transition as “the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centred to adult-orientated health care systems”. Young people with chronic health conditions from paediatric to adult care is a gradual process that needs to be better recognised, and managed in a coordinated, integrated manner with young people. She played an informative and educational video Transition Day at Luna Park taken at Luna Park, Sydney and their views on their needs and issues. Transition Experience - Renee Young woman in Transition process Renee spoke about the importance of parents starting to educate their young people starting approx. 15-16 years old about the process of their own health care after age 18 and into young adulthood and further. She recounted a recent experience which required assistance of her parents and helpful medical professionals to enable her get the health care she needed. Afternoon Tea - (left to right) Mike Kendall (Treasurer), Lynne Foxall (Vice-President), Judy Stenmark (CEO Osteoporosis Aust.), Janet Swift (Secretary - back to camera).
Events > Photo Gallery > 17 September 2005 - Adult Information Day