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Brittle
Bones
groups.yahoo.com/group/brittlebones
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For
those who have Osteogenesis Imperfecta or know
those who have this condition can meet, share
ideas, support, and suggestions.
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Brittle
Bones Teenagers and Adults
groups.yahoo.com/group/Brittle_Bones_Teenagers_and_adults
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Especially
for both teenagers and adults.
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Brittle
Bones Trap
health.groups.yahoo.com/group/brittle_bones_trap
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To
provide a forum for those families who have been
unjustly accused of child abuse because of a
brittle bone disease. It is to provide
information to help prove their innocense, and
support for these families during this period of
crisis in their lives.
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OI Adults
groups.yahoo.com/group/OI_ADULTS
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For
18+years and have Osteogenesis Imperfecta, then
check out this list. If you are shy and don't
want to discuss mature subject matters then this
is not the place for you. People with OI deal
with many isues in their daily lifes, such as
healing fractures, meds, experimental drugs,
physical limmitations and sex yes even
sex.
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OIanswers
· Infants with Osteogenesis Imperfecta
health.groups.yahoo.com/group/OIanswers
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Has
your child been diagnosed with OI (Osteogenesis
Imperfecta or Brittle Bone Disease)? This group
is dedicated to the families who are pregnant or
who have a newborn with a severe form of OI
[Type II (2), Type III (3), Type IV
(4)]. The "OIanswers" group welcomes family
members who are seeking answers & comfort
during the frightening time after initial
diagnosis.
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OI Friends
groups.yahoo.com/group/OIFriends
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A
place for others with OI to meet and maintain
friendships. You don't have to have OI to
join.
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OI Health
health.groups.yahoo.com/group/OIhealth
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For
adults and teens with Osteogenesis Imperfecta
(OI) who would like to ask questions, share
information and discuss matters relating to
their health, well being and everyday
living.
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OI
Parents
health.groups.yahoo.com/group/OIparents
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Where
parents of infants and children with
Osteogenesis Imperfecta OI) can share
information, learn how to care for a child with
OI, and connect with other parents going through
similar experiences.
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OI Talk
health.groups.yahoo.com/group/OItalk
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For
people with Osteogenesis Imperfecta and their
friends and family to provide medical
information and support to each
other.
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Osteogenesis
Imperfecta
groups.yahoo.com/group/Osteogenesis_Imperfecta
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Global
support community for people affected by
Osteogenesis Imperfecta (OI). This group is open
to anyone interested in making friends, sharing
information and providing support for persons
affected by this disorder.
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Parents
with OI
groups.yahoo.com/group/Parents_with_OI
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"Parents
with OI" group is open to single, married, or
cohabiting adults with Osteogenesis Imperfecta,
who are currently raising biological and/or
adopted children (who may or may not also have
OI), or who plan to start a family in the
future. The Parents with OI group will offer
support for the many challenges of parenting
with a disability. Topics will include
accessible/independent parenting, societal
attitudes towards parents with disabilities,
pregnancy and childbirth, and general issues of
child care and child rearing.
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Search
yahoo!groups for more OI related lists.
A search of
egroups database in March 2005 shows
over
20 email groups for Osteogenesis
Imperfecta.
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